Thursday, January 29, 2009

Thursday Labs

BUN 47, Creatinine 2.3, Hgb 6.9 and Hct 20.5. The phosphorus/calcium balance is much better. It looks like the kidneys are starting to come back.

We're waiting for the doctor to come around to let us know if we're going back to California today.

Wednesday, January 28, 2009

Wednesday Morning Report

The labs that were posted were excellent news but we always wait to hear the Dr. report before we get to excited.  Good news this morning is that they feel we are about at the end of all this for now.  It is another day of waiting.  Since he had dialysis yesterday we have to wait and see if the good numbers are because of the dialysis alone or because his body is also helping out now.  The Dr. is very hopeful that tomorrow (thursday) morning labs will show us that his body is in fact responding well and he will be discharged at some point tomorrow. We are hopeful to catch a flight home later in the day if all goes as we hope.  Have we used the word "hope" enough.  It's what has kept us plugging along as we continue the waiting game.  We look forward to seeing each of you again soon!

Wednesday labs

LDH: 819
BUN: 42
Creatinine: 2.38
Platelets: 122,000

The H&H aren't changed, so remain low. Other than that, the dialysis improved his kidney numbers!

Tuesday, January 27, 2009

Tuesday ... Regular stuff

Jonny is feeling a great deal better.  He walked in the hall with the PT and his appetite has really kicked in.  He is in dialysis again today and seems to be tolerating it well.  He is on a medication to boost the production of RBCs in the bone marrow and the doctors want to see if that works fast enough to avoid another transfusion.  
He is cheerful and patient but anxious to get back home.  The doctor visited him in dialysis and told us that he might be able to fly back to California on Thursday or Friday if he continues to improve.  He is somewhat dazed by the extent of the prayers that have been sent up for him.  We are so grateful for the support from all of you.

Tuesday "tech stuff"

Platelets are up to 91,000 ...which is good considering where we started.  Hgb today is 7.1 and the Hct 20.3.  BUN 93 and Creatinine 4.39, Calcium is low and phosphorus high. The LDH is down from 2000+ now and is 1031.  He is holding steady but not actually trending up in his labs yet.

Monday, January 26, 2009

Monday Morning Report

It's more good news this morning as I sit and watch JD doing a little physical therapy.  We are still in the waiting game to see how his body reacts. However, his labs this morning were very good and he is hopeful that the kidneys are beginning to recover.  If everything goes as we hope then he will be able to come home on Wednesday and follow up with the Dr. at UC davis.  There is a chance that he may need another round of dialysis tomorrow morning and a transfusion. It will all depend on how the day goes.

The physical therapy is exhausting but he is a trooper. Thanks again for all your support and prayers.  We are taking it one day at a time with much hope!

Sunday, January 25, 2009

Light at the End of the Tunnel

The second dialysis went great and for the first time, his labs are turning around! He still has a way to go, but the doctor feels that if he progresses the way he thinks he will, we could look at being able to maybe come home by the end of the week. The Doctor is planning on contacting some nephrologists at UC Davis for transition and follow-ups on his Hemolitic Uremic Syndrome.

Again, we can't begin to tell you what it has meant to us to hear about all the friends and families praying for Jonny Jr. It truly has made all the difference and is a testament to the power of prayer. Please keep those prayers coming, and if Jonny can keep things improving, we might be able to thank many of you in person.